Pubblicazioni

Pubblicazioni

Grazie alla preziosa collaborazione delle persone con SM e dei loro famigliari o cari, il Registro svizzero SM è già riuscito a realizzare alcuni dei suoi progetti di ricerca e a pubblicarne i risultati nelle riviste specializzate.

• BRAIN SCIENCES – disponibile solo in inglese
  The Effect of Depression on Health-Related Quality of Life Is Mediated by Fatigue in Persons with Multiple Sclerosis
  
  
• STRESS AND HEALTH – disponibile solo in inglese
  Relationship between Job Demands‐Resources and turnover intention in chronic disease – The example of multiple sclerosis
  
  
• JOURNAL OF PSYCHOSOMATIC RESEARCH – disponibile solo in inglese
  Major depressive disorder subtypes and depression symptoms in multiple sclerosis: What is different compared to the general population?
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
  Physiotherapy use and access-barriers in persons with multiple sclerosis: A cross-sectional analysis
  
  
• JOURNAL OF NEUROLOGY – disponibile solo in inglese
  Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
  Development and validation of the self-reported disability status scale (SRDSS) to estimate EDSS-categories
  
  
• FRONTIERS IN NEUROLOGY – disponibile solo in inglese
  60/30: 60% of the Mobidity-Associated Multiple Sclerosis Disease Burden Comes From the 30% of Persons with higher impairments
  
  
• JOURNAL OF NEUROLOGY – disponibile solo in inglese
  Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.
  
  
• FRONTIERS IN NEUROLOGY – disponibile solo in inglese
  A Framework for Estimating the Burden of Chronic Diseases: Design and Application in the Context of Multiple Sclerosis.
  
  
• MULTIPLE SCLEROSIS JOURNAL (MSJ) – disponibile solo in inglese
  How do patients enter the healthcare system after the first onset of multiple sclerosis symptoms? The influence of setting and physician specialty on speed of diagnosis
  
  
• MULTIPLE SCLEROSIS JOURNAL (MSJ) – disponibile solo in inglese
  Factors associated with time from first-symptoms to diagnosis and treatment initiation of Multiple Sclerosis in Switzerland
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
  Patterns of care for Multiple Sclerosis in a setting of universal care access: A cross-sectional study
  
  
• BMC NEUROLOGY – disponibile solo in inglese
  The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
  The disease burden of multiple sclerosis from the individual and population perspective: Which symptoms matter most?
  
  
• SWISS MEDICAL WEEKLY – disponibile solo in inglese
  A digitally facilitated citizen science driven approach accelerates participant recruitment and increases study population diversity
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
  Recommended outcome measures for inpatient rehabilitation of multiple sclerosis are not appropriate for the patients with substantially impaired mobility
  
  
• LA SM E IL LAVORO – informazioni per le persone con SM
  Flyer
  
  
• LA SM E IL LAVORO – informazioni per i datori di lavoro
  Flyer

Rapporti annuali

Nell’attuale rapporto annuale troverete interessanti approfondimenti su progetti di ricerca, indagini e valutazioni passate. Le auguriamo una buona lettura.

• Rapport annuale 2021 Registro svizzero SM
  Scaricare il rapporto annuale

• Rapport annuale 2020 Registro svizzero SM
  Scaricare il rapporto annuale