Pubblicazioni
Grazie alla preziosa collaborazione delle persone con SM e dei loro famigliari o cari, il Registro svizzero SM è già riuscito a realizzare alcuni dei suoi progetti di ricerca e a pubblicarne i risultati nelle riviste specializzate.
- JOURNAL OF NEUROLOGY – disponibile solo in inglese
Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study - MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
Development and validation of the self-reported disability status scale (SRDSS) to estimate EDSS-categories - FRONTIERS IN NEUROLOGY – disponibile solo in inglese
60/30: 60% of the Mobidity-Associated Multiple Sclerosis Disease Burden Comes From the 30% of Persons with higher impairments - JOURNAL OF NEUROLOGY – disponibile solo in inglese
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study. - FRONTIERS IN NEUROLOGY – disponibile solo in inglese
A Framework for Estimating the Burden of Chronic Diseases: Design and Application in the Context of Multiple Sclerosis. - MULTIPLE SCLEROSIS JOURNAL (MSJ) – disponibile solo in inglese
How do patients enter the healthcare system after the first onset of multiple sclerosis symptoms? The influence of setting and physician specialty on speed of diagnosis - MULTIPLE SCLEROSIS JOURNAL (MSJ) – disponibile solo in inglese
Factors associated with time from first-symptoms to diagnosis and treatment initiation of Multiple Sclerosis in Switzerland
- MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
Patterns of care for Multiple Sclerosis in a setting of universal care access: A cross-sectional study - BMC NEUROLOGY – disponibile solo in inglese
The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research - MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
The disease burden of multiple sclerosis from the individual and population perspective: Which symptoms matter most?
- SWISS MEDICAL WEEKLY – disponibile solo in inglese
A digitally facilitated citizen science driven approach accelerates participant recruitment and increases study population diversity - MULTIPLE SCLEROSIS AND RELATED DISORDERS – disponibile solo in inglese
Recommended outcome measures for inpatient rehabilitation of multiple sclerosis are not appropriate for the patients with substantially impaired mobility - LA SM E IL LAVORO – informazioni per le persone con SM
Flyer - LA SM E IL LAVORO – informazioni per i datori di lavoro
Flyer
Rapporto annuale
Nell’attuale rapporto annuale troverete interessanti approfondimenti su progetti di ricerca, indagini e valutazioni passate, così come una prospettiva sugli obiettivi e i desideri per l’anno 2021.
- Rapport annuale 2020 Registro svizzero SM
Scaricare il rapporto annuale