Publications

Publications

C’est grâce à la participation active des personnes atteintes de la SEP et de leurs proches, que de premiers projets de recherche ont pu démarrer et que les résultats ont pu être publiés dans certaines revues scientifiques.

• JOURNAL OF NEUROLOGY – seulement disponible en anglais
  Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – seulement disponible en anglais
  Development and validation of the self-reported disability scale (SRDSS) to estimate EDSS-categories
  
  
• FRONTIERS IN NEUROLOGY – seulement disponible en anglais
  60/30: 60% of the Mobidity-Associated Multiple Sclerosis Disease Burden Comes From the 30% of Persons with higher impairments
  
  
• JOURNAL OF NEUROLOGY – seulement disponible en anglais
  Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.
  
  
• FRONTIERS IN NEUROLOGY – seulement disponible en anglais
  A Framework for Estimating the Burden of Chronic Diseases: Design and Application in the Context of Multiple Sclerosis.
  
  
• MULTIPLE SCLEROSIS JOURNAL (MSJ) – seulement disponible en anglais
  How do patients enter the healthcare system after the first onset of multiple sclerosis symptoms? The influence of setting and physician specialty on speed of diagnosis
  
  
• MULTIPLE SCLEROSIS JOURNAL (MSJ) – seulement disponible en anglais
  Factors associated with time from first-symptoms to diagnosis and treatment initiation of Multiple Sclerosis in Switzerland
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – seulement disponible en anglais
  Patterns of care for Multiple Sclerosis in a setting of universal care access: A cross-sectional study
  
  
• BMC NEUROLOGY – seulement disponible en anglais
  The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – seulement disponible en anglais
  The disease burden of multiple sclerosis from the individual and population perspective: Which symptoms matter most?
  
  
• SWISS MEDICAL WEEKLY – seulement disponible en anglais
  A digitally facilitated citizen science driven approach accelerates participant recruitment and increases study population diversity
  
  
• MULTIPLE SCLEROSIS AND RELATED DISORDERS – seulement disponible en anglais
  Recommended outcome measures for inpatient rehabilitation of multiple sclerosis are not appropriate for the patients with substantially impaired mobility
  
  
• LA SEP EL L’ACTIVITÉ PROFESSIONELLE – informations pour les personnes atteintes
  Flyer
  
  
• LA SEP ET L’ACTIVITÉ PROFESSIONNELLE – informations pour les employeurs
  Flyer